
The recent turn of events have been so exciting and heartwarming, and I am flabergasted, but also sorry not to have updated you sooner.
On October 2nd, our entire family met with Pauline - Jiliang's ICU nurse - and her family as well. Last May, Pauline offered to donate her hair, as Jiliang was leaving the Pediatric Cardio-Thracic Unit (ICU) to move down to Moderate care. I had temporarily lost touch with Pauline until a unique chains of events put us back in touch with one another in September. I was under the impression that so much time had elapsed that she couldn't possibly still have her long locks. Yet, coincidently, she was still growing her hair for Jiliang, in hopes that I would be contacting her. What a special individual she is!!
On October 12th, I filled out an online application for Children With Hair Loss, to see if Jiliang would be able to qualify for a hair weave. It was very endearing to read about the success stories of the children who have been helped through this organization, and I prayed that they would be able to help our Jiliang have hair.
I was very surprised at the magnitude of their service, for an organization that I had not heard of until May of 2009; and they are right here in Michigan! I strongly encourage you to check out their website at:
http://childrenwithhairloss.us/home
They have a lot of really wonderful fundraisers and events where you can donate your own locks.
October 16th, we met with Pauline again to pick up her hair. We briefly visited Pauline in the PCTU, admired her new, sheek haircut. Then, we snapped a few photos, and left with a ponytail from Pauline and a bag full of ponytails donated from Nurse Diane, who had originally referred me to Children With Hair Loss.
The following Monday, October 18th, I was shocked to receive a return call from the organization, Children With Hair Loss. When I was informed that Jiliang would qualify for hair prosthetics once a year, I was ecstatic. What a Godsend! I was even more elated when she said "Free of Charge until age 21"!!! Because Jiliang's hair weave is going to be challenging, although very doable, they are going to take a mold of her head to determine the best, most natural fit for her new hair. And YES, Pauline's hair will be used for her first hair weave. To say that I was excited is an understatement. I was immersed in the same happy and thankful feelings that I felt when we first saw her picture; when Jiliang's cardiologist called to say Jiliang qualified for corrective surgery; and when we found out that Jiliang made it out of surgery safely and triumphantly. Yes, once again, there were Angels in our corner, and the man above smiling down on our little girl. One more piece of the puzzle fit in to the bigger picture perfectly.
Two Weeks Later:
Jili wore her favorite heart dress in honor of her Cardiology friends. However, she was a little preoccupied with being in the ICU unit, so we couldn't get her to smile.
Off to the Mott's courtyard playground as promised.
Mommy-Daughter photo
Whenever possible, we end the Mott's Day with Play!
Scott and the kids spy chipmunks waiting to jump out of the bushes for their next morsel of food.
Thank you Pauline, Friends at "Children With Hair Loss", and Nurse Diane!
Jill :)







